Monday, December 7, 2020

Smoke

Smoke. 


This transparent, little white whisp of a thing; see-through, innocent, a by-product. When you burn a little fire the smoke is white or maybe black but it curls up lazily in unpredictable patterns, never the same twice. It’s barely there, unassuming, hardly claiming existence. The white variety even seems to possess an innocent, pure, holy quality to it, just like snow except that it yearns for the clear sky instead of the riotous and dirty ground. 


But this thing lies. It is deceptive. It wreaks complete, scorched-earth warfare in a very concrete way, all the while masquerading as delicate and weak. Do not be fooled.


This thing is a wrecking-ball, a cozy Sherman tank sitting in the fire pit in your backyard and you seek it out when it is cold. You will inhale it into your lungs and it will destroy them like a shell in a foxhole. It will cause cancer to break out in your body and nothing will ever be the same. Your family will suffer and you, too, will suffer more than you ever knew you could. You will spend all of your time in hospital rooms and at doctor’s appointments and you will learn what different drugs feel like and you will schedule your days around the taking of them. You will travel long distances and your children will get lots of “grandma time”. Nurses will wipe your ass and your wife will have to give you sponge baths and the saddest part is that this will begin to feel normal. You will think that your humiliation is complete until you discover a new, more complete form of it waiting just around the corner, and sooner than you think. It will be utterly and completely awful and soul-shatteringly beautiful all at the same time and you will both love it and hate it, this thing we harmlessly call smoke.

Wednesday, September 2, 2020

Altitude

 I am utterly, utterly, unbelievably, and soul-shatteringly exhausted.

I am lying on the ground under the pines, listening to water tumbling over the smooth, round rocks in the stream just to my left and the wind tickling the tops of the trees, with my legs resting in a patch of scratchy heather and my back pricked by brown pine needles, my small pack tucked under my head and bending my head too far forward. Two mountains claw their way three thousand feet into the sky behind me, and I can hardly believe that I was just on top of one of them, nor how little satisfaction it provided. My last thought is that  those pine needles are going to stick to the back of my shirt like glue before I blend into the scene, become a part of it, no longer myself but just a part of the landscape, and I don’t care, because I am no longer upright- a state for which I’ve been intensely yearning for for twelve hours. Moments later I am asleep right there under the clouds which are trying hard to gather enough momentum to burst forth into a magnificent, ecstatic, and cathartic afternoon thunderstorm.

It all started twelve hours ago, at 2:45 a.m. That’s when my watch alarm went off, chirping into the alien peace of a three hour night’s sleep spent at eleven-thousand feet underneath a sky clear enough to watch the milky way spin its eternal circles around me. I was cold when I woke up. It was in the eighties at home at this time of the day, but here it was closer to thirty. Forgetting the lessons I’d learned from dozens of mountains before, I neglected to eat a heavy meal the night before, meaning that by the time we awoke my metabolism was no longer churning through the calories and keeping me warm. There’s something unique and absurdly pleasurable about leaving the warmth and softness of a puffy down sleeping bag to strike out into the crisp cold of an alpine morning, though, so before long I was sitting in the doorway of the tent willing my already slightly numb toes into even colder, stiffer boots.

Soon the familiar routine was complete and, under the red light of my headlamp, my low-weight, high calorie pop-tart rested contentedly in my belly, each item in my pack had been carefully selected and placed in its designated “accessible” or “non-accessible” location, the clothing layers had been adjusted just right so that I would be cold when I started moving but warm up to just the right temperature as soon as I started moving. It all seemed so comfortingly familiar and easy, I thought, just like it used to be. This time I didn’t even need to worry about figuring rope lengths between climbers or checking to ensure I had all of my crevasse rescue gear (an ever-evolving assortment of pulleys, ice screws, and cordolette), put the skins on my skis, or find my ice axe.

But then, there was the one thing… A small reminder, really, that this was not like all the other mountains, and it came just before our small circles of light blazed out into the darkness like explorers from younger times when there were still blank spots on the map. That is, I had to take my chemo pills. I tried, I really did. And then I gagged and puked all over the ground in front of our tent. I even got a little on the part of my puffy down coat right in front of my nose, which would smell like vomit all day, some on my pants, a little on my shoe, and I buried one of the tent stakes in a pile of pop-tart. Great, I thought, I was starting out the day without all of the drugs I needed to get through a normal day, let alone one like this, but my buddy James understood what this day meant and, instead of questioning out loud whether we should continue, simply gathered some pine needles and covered up the mess, then looked up at me with the question, “well, are you ready yet?” in his eyes. God bless him, I thought, for not questioning. He should have questioned, he wanted to question, but God bless him for not questioning. We shouldered packs and moved out, neither one of us entirely sure our planned daily activities were a good idea.



This was certainly the easiest mountain I’d climbed in the last decade, and I had selected it for that purpose since I had no idea how wrecked I’d feel at altitude after a year of cancer treatment while still on chemo. The approach is insanely easy and there’s very little commitment- you can bail at any time if you see storms approaching. The trail itself is well-maintained and not very remote. The mountain is actually many people’s first 14,000’’+ peak to visit. It’s much closer to lots of uphill hiking than actual alpinism, the kind to which I have grown accustomed in fifteen years climbing from Asia to Alaska that requires technical knowledge, sound judgment, and a level of commitment that, at some points, requires action that means life or death. But I just needed a win this year, something easy, both as a celebration of finding myself in cancer remission and a proclamation to my own soul that I was back to what I love doing most. I resolved to keep it down to one mountain, though and to only climb it with perfect weather conditions and a strong partner with all the right equipment and research. All of those things rarely coalesce in the mountains, but on this day, they actually had.

The climb wasn’t quite the win I was looking for, though. During the time it took me to get up and down that easiest of mountains, I was passed by little kids the same age as my own and elderly people much older than my own parents. Before the sun rose, when it was just my tiny circle of light and the darkness enveloping me, I was so dizzy that I was forced to use trekking poles just to stay upright and I stumbled from one side of the trail to the other like Otis from Andy Griffith. I knew James was concerned, but he mercifully didn’t mention it. The experience was disorienting and nauseating, but dizziness has, of late, become like an old but always annoying friend who drops by unexpectedly and often. So, rather than allowing my altered cochlear activity to disturb me like it might have someone witnessing the effort, I started to laugh at my own pathetic pep-talks to myself that I “mumbled as I bumbled” (that gave me a good chuckle).

And the first mantra was this: Don’t Stop. “Don’t stop,” I told myself, as each step became harder. Just don’t stop. You don’t think you can make it to the top, but just don’t stop. You can always take one more step. Always one more. Over and over and over. Just don’t stop. Soon we were above treeline. Just don’t stop. James is waiting. We worked our way around what would be a mountain at home but barely counted as a hill here. Just don’t stop. Just don’t stop. One more step. James is waiting. We made it to the final push- a series of who-knows-how-many switchbacks over tallus right up to the summit. Just don’t stop. Just don’t stop. One more step. James is waiting. And then suddenly I was on top. I took a nap. I ate a lemon pepper tuna packet. And then we descended, which somehow felt like it took ten times as long as the ascent, with quads burning the whole time and stumbling over over loose rock, hating the larger steps down for the way they jarred my knees. And then I stole this stupid good climber from Czechia’s mantra- “a muerte,” which means, “to death”, in Spanish. God, it felt like a death march. How could the trail back be this much longer than the trail up? And then, when I finally saw our tent, I swear the distance grew longer as I approached it.

And then I was there, lying in the heather and the pine needles, looking up at a newly-clouded sky after my sleeping. James was patiently leaning against a tree not far away, presumably contemplating the stream in front of him. We weren’t finished for the day, and he knew it, but he also knew I couldn’t go any further. We were out of water, which was an especially prickly predicament for those of us belonging to the Mono-kidney Club at altitude taking chemo meds. Because of our lack of water, we had to descend more. There was more to be done that day. Sleeping bags to be stuffed, tents to be rolled, more distance to cover… too many things to contemplate all at once. I sat up, James looked my way at the noise, and we began. Soon, we shouldered packs and headed out with more to do, always more, the struggle never ending.

And I have to say that although I may have stood on top of it, I don’t feel like I got my victorious win from Grays Peak. Despite what I’m able to believe during my everyday life, I’m not back to normal after a year of cancer. I am much, much weaker physically than I had hoped, and there was no ignoring it on that mountain. There was more mourning than celebrating on that trail. I’m happy and I’m grateful for having survived many things in this life that should have killed me- stage 4 cancer being high on the list, but up there where the thin air was clouded by the distant wildfires, I couldn’t help but feel bitter and angry. It’s not fucking fair. I’m sorry for the language, but that sentence needs the intensity it brings. It’s not fucking fair. I didn’t ask for cancer. I didn’t ask for any of this. All I ever wanted was to live my little life with my little family in our little corner of the world and then be forgotten in a few years, but here I was feeling, as James wrote so well a little after our trip, “mournful, decimated, overwhelmed, and angered.” I’ve lost so much, even my ability to enjoy the place where I most readily commune with God.

So the mountain didn’t give me what I asked of it, and as I’m writing this I’m two blocks from M.D. Anderson waiting for appointments tomorrow where doctors will tell me if the cancer has returned, still wondering if this life is going to give what I ask of it. I’m scared, even six months after treatment has ended.  But if there’s anything to learn from Grays peak, it has to be that things will unabashedly and stubbornly be as they will be, and that we have absolutely no control over them.  I can’t force a mountain to provide resolution to a year of cancer any more than I can herd cats, but instead we should, as Shunryu Suzuki rightly said, “accept everything as it is without difficulty,” because right there, in the still, silent eye of the hurricane of suffering in our temporal lives, we will find stillness, comfort, and a peace beyond understanding. It is only from this place that we can even begin to love truly in a way that forgets self and sees the beloved with clarity, which is the end for which we all were created, the round peg that fills the holes in all of our hearts. It is only from this place that we can begin to live.

Today I am grateful for Grays Peak- that high point in the dirt to which we will all return. I puked at its feet and I slept on its head and I suffered much in between, and that suffering was as sweet as drinking from the crystal-clear, cold, streams that hurry down its flanks only to return, year after year, like Sisyphus to his summit.

 

Tuesday, May 12, 2020

Dreaming

I read today that, “nichts ist menschlicher, als zu trauemen.” That is, “nothing is more human than to dream.” I think that might be true. It might just be what separates us from animals and the rest of the world in which we’re immersed.

We dream. And that dreaming has caused all of human history. Our dreaming gives rise to our hopes and our desires, and along with those come fear and clinging. Everything from the most horrific war crimes to the most selfless of acts, the giving of oneself for another, comes from our dreams.

It seems that we mostly dream of better things to come. We dream that one day soon we will make more money or have a bigger house or just one more kid. Or maybe we’re on the opposite end of the spectrum and our idea of better things looks like adventures in far-flung countries that we can meticulously photograph and carefully curate on instagram or tick-tock or whatever the latest social media platform is so that we can at least convince others that our dreams are coming true, even if we don’t believe it ourselves.


But do we ever get there, to the better things? I make three times as much money as I did at my first real job, but it sure doesn’t feel like it. My current house is two and a half times as big as the first little rent house Emily and I moved into right after we were married, but somehow there was space for just as much love in that first house as our current one . And I’ve tried the other end of the spectrum, too, all to no avail. Even the pursuit of eye-catching facebook pictures via Alaskan mountaineering expeditions to the tops of some of the world’s tallest peaks or the self-satisfaction of telling tales of peering over the continental shelf into a black void that is the bottom of the world underneath 100 feet of water fail to deliver the much-sought-after dream that I have finally arrived, that everything is as as it should be, that there is nothing left to do and I can finally rest.

So I think that for now I will put aside my dreams. That sounds terribly depressing, I know, and goes straight against the whole American narrative of dreaming big and working hard to achieve that dream. Maybe putting aside my dreams makes me un-American, or maybe less human. I don’t know. But whatever the case, that model just doesn’t work any more. Nope.

Instead, I think I’m just going to quit, and be here. I’m going to quit my striving. I’m going to quit my running from suffering, quit panicking whenever hard things come my way, quit fearing the unknown, and quit the never-ending treadmill race that is the pursuit of material happiness. In their place, I think I’ll just be, right here and right now. We’re so accustomed to these old habits that it seems impossible to shed them, but why should it be? I think it’s worth the trouble, because right now is a pure and lovely place to be. It really is what we’ve been dreaming about all along. It’s the melody that snow-melt plays under rocks as it returns to the ocean, or the infinite color palette of a sunrise gently playing out on its canvas of clouds. It’s the comfort of listening to the person you love most dearly breathing gently next to you in the dark and the wonder in the way that tree leaves in the wind sound exactly like ocean waves. It’s an uncontrollable belly laugh after a raunchy joke with friends after one too many pints or the little twinge of fear, even when you’re too grown up to admit it, when you hear the first low rumbles of thunder from an approaching storm.

Right now is so damn beautiful that it breaks my heart, and I don’t want to miss it dreaming of what could be, because those things I’m dreaming of are already here.

Sunday, May 3, 2020

Ground

I’m terrified.

I’m terrified of the impermanence of life, that I will die. And it’s not just that I will die, it’s that I may die too young, without getting to experience all of the things that I want to experience. I suppose I’m greedy for experience, for seeing the kids grow old and sitting on the porch with Emily when we’re wrinkly and for having a a bittersweet retirement party one day from the fire department.There are just a lot of things that I want to do still, and if I die from cancer at a young age, I won’t ever get to see them.

And not just that, but it will bring hardship on my family. I love them all, each one individually, so much so that I can’t bear the thought of being the cause of more hardship in their lives. They deserve so much happiness.

So because of those things, I am terrified. But I’m beginning to suspect that the state of terror isn’t such a “bad” one, for lack of a better word. For some reason, there’s a negative, unpleasant feeling attached to it, and I think that’s really what is so distasteful about it. When that’s removed, though, being scared is tolerable. It’s something that I can allow to be alongside me, and I don’t need to panic and immediately try to eradicate it.

And I’m surprised to say that right here, in this entirely groundless state, is where I want to be. So much suffering is caused by our attempts to find solid ground. When we allow ourselves to just not know, however, possibilities for joy and kindness and compassion open up that we never knew we’d see. But I think that only people who have been through suffering and have been forced to live without solid ground can easily choose to continue living that way. I’ve watched Band of Brothers recently, and it seems like veterans experience this, too. Suffering can free us from our conception that we should seek the pleasant and flee from the unpleasant, and this creates space in our hearts for warmth and love and gentleness.



So I think my cancer and then this crazy pandemic, which is just the particular form that suffering took in my life recently, was a great gift. It pulled the ground out from underneath me and showed me that it’s okay here. And I’m really shocked to say that I prefer it here, in the uncomfortable space of not knowing.

I have to laugh, though, when I still catch myself all the time trying to solidify things. I find that my habit of doing so is especially tenacious as it concerns my identity, and with that, my ego. I think all the time, “I really like the way I look when I do such and such,” or, “people will really think that I’m this or that kind of guy now that I’m…” I’m really hilariously vain, and I can’t shake the habit of trying to establish a self-approved identity in some way. I'm even thinking about what people will think about me when they read this. So it goes.

And that’s kind of how everything is, isn’t it? It just goes. We think we know, but we don’t. We do, but we don’t. We learn, we work, we suffer, we rejoice, and sometimes we even love purely and without ulterior motives. And at the bottom of it all there is a great impartiality to life that is both terrifying and life-giving. I don’t know what to think of it, but I don’t have to know. None of us do. That’s the sigh of relief, the exhalation when you finally lay down to rest at the end of a long day. We don’t have to know. We don’t have to decide. We don’t have to have an opinion. We just have to be, and that’s the one thing we’ve all been successfully doing since the day we were born and will continue to do until the day we draw our last breath, whether it’s after a long, blessed life or far too soon.

Monday, March 9, 2020

The Other Shoe

In 36 hours I will be free of cancer. I can’t believe I even get to write those words! Doing so was never a given. And, my God, there have been some rough times trying to get to writing them. There have been times when I just looked at my wife, crying, and asked her, begged really, if it would always be like this. Times when I physically hurt so badly that it broke my spirit, something that had never happened before and which I didn’t think possible until it was. I’ve certainly had some trying times before. As an alpinist, I have survived alone crossing crevassed mountains at altitude in a whiteout with only the snacks in my pockets and no shelter. As a runner, I have run marathons when my body ran entirely out of glycogen and I just kept going anyways. As a firefighter, I have been in rooms hotter than your oven- rooms that lit the wooden chock on my helmet on fire, crinkled the leather shield on my helmet, and caused my body to involuntarily scramble for egress out of sheer animal panic. But still, in the last seven months and four days I have felt more pain than I thought I would in my entire lifetime.

And you know, it’s funny how Emily and I used to always talk about how lucky we were to be living the life we did and how the other shoe was certain to drop soon. Then, BAM! Turns out that other shoe is a real bitch. But still, we’re about as lucky a pair as you’re likely to find. Our kids are healthy. We have such amazing friends and family- people who continue to care for us even long after my diagnosis when you’d think they would begin to forget. We live in a country that allows us to do what we want and are part of a church community that accepts and loves broken people like us. And now, we’ve even come to appreciate cancer’s lessons.

And today’s lesson is this: each day matters. You think you have an unlimited number of days on this Earth, that somehow you are the first immortal being, but you’re not. This all comes to an end some day, and whatever it is you think happens afterwards begins. I don’t say it to sound sound morbid, I say it to bring hope. Now is the time to forgive. Now is the time to live. Now is the time to do something you always wanted to but never thought you could. Life, beautiful life, is happening right now, and you get to be a part of it. But don't get distracted. Money comes and goes, jobs are fleeting, and the grass on your front lawn will keep growing back. Instead, take a risk and love people and be vulnerable with them. Don’t just exist, but live abundantly. Hug your kids like it’s the last time. Tell your wife you love her. Even if you get hurt in the end, it’s worth it. In this life, there is no practice for something else and there is no dress rehearsal. This is your one and only shot- make it count.

I feel this truth now, deep down in my bones in a way I never could have before. I don’t really expect to live to a ripe old age anymore. I know that may sound incredibly sad, but I realize that, while I may have won this battle with cancer, there is a war going on, and I might not win the next battle. And it’s not sad. In fact, it’s the most hopeful thing I’ve learned from cancer so far, because it taught me this most important thing: the “why” of cancer. You want to know why cancer happens? Because life happens, and a benevolent God doesn’t want us to miss it. I’m not going to miss it. Don’t you miss it, either.


“Because in the end, you won’t remember the time you spent working in the office or mowing your lawn. Climb that goddamn mountain!” – Jack Kerouac


Sunday, March 8, 2020

Timmy in the flesh

We're heading to Houston today for three days of radiation, which is expected to be Levi's final cancer treatment. It's been such a long eight months of this journey that we can hardly believe the end is in sight!


In other news, we recently got to see Timmy Tumor in the flesh! You can see below that he was HUGE. The bottom right of the mass is his kidney for size comparison. This is the inside view, as the tumor was sliced in half before photographing.


This week's radiation treatment will take care of the remaining cancer in Levi's body, a small mass in the lower lobe of his left lung. The doctor explained that these three days of radiation will result in the tumor's complete removal, equivalent to having it surgically removed without the complications. He shouldn't have any side effects except for some coughing three months from now (crazy how the body works!).

He has also started taking the chemo pill again, as he will have to for a year or two in order to prevent the cancer from returning. He is building up the dose very slowly and so far hasn't had the bad side effects that he did before. Pray he can continue to increase the dose to the necessary level without feeling bad. 

And while you're praying, please say a little prayer for Nora who was just diagnosed with flu A today right after we left for the airport. It breaks our hearts to not be able to be with her when she is so sick, but it's also better for Levi to be as far away from the flu as possible. Pray for her healing and Wyatt to stay well so we can return home on Wednesday as scheduled.

Thursday, February 20, 2020

Wal-Mart Coffee and Sean Connery

I got some really good news today, and it put to rest a lot of my fears about the future. This morning we met with the surgeon for a follow-up appointment and he told us that the pathology report from surgery showed “clear margins”, meaning that he got all of the cancer. Well, except for the cancer that’s still on my lung. You can’t have your cake and eat it, too, you know. Now I’m just barely cancerous. Woot!

I also had the pleasure of yet another CT scan. For those of you who haven’t received such a golden opportunity, just let me describe it for you. First, you take the shuttle ride to the ROC. It’s actually named the “Radiation Outpatient Center”, but all I can think of any time the shuttle driver (always the same sassy lady who wears gloves with cut-off fingers like she’s expecting to have to break up a brawl between the almost exclusively geriatric and very sick clientele behind her) calls out, “Welcome to the Rock”, is Sean Connery’s voice growling, “Gentlemen, welcome to The Rock” when he and Nic Cage finally break into Alcatraz.

Anyways, once Sean Connery greets you, you enter the ROC and immediately notice that the waiting room is, shall we say, generously proportioned, and that there are a LOT of people waiting for a scan of some sort. Yes, you correctly surmise, you’re going to be here for a while, and dammit, you forgot your book. You beat the old man with whom you had a thrilling conversation on the shuttle about his coffee buying habits at Wal-Mart to the check in desk and pay the price in the form of a hard-core old man stink-eye, then you join the rest of humanity in the waiting room, just one more monkey in the proverbial barrel. That old man was really slow anyways, right? No, you don’t have to feel bad about that.

Next step- the drink. You get to slurp down 32 ounces of radioactive material in your favorite flavor of crystal light while you continue to kick yourself for that forgotten book (you’re at the good part, too!), then they call you back to stick you with another IV (better use the right arm. They already stuck the left one to draw labs this morning) and ask you fun questions about things like your last bowel movement and if you’ve had a fall within the last week. Being a rock climber now for the last 15 years, you always like to answer, “how far?” as you imagine some of the 30+ foot falls you’ve taken when out on the vertical, but the nurse of course never gets your inside joke with yourself and simply repeats the question while peering seriously over the top of those spectacles.

You just thought those questions were personal enough to forever rob you of your dignity, but no, your humiliation is far from complete. Next you’re taken to the dressing room, where you’re ironically robbed of your own clothing (shouldn't it be the undressing room?) and forced into a one-size-fits-all set of clothing that was cut to fit someone easily 200 pounds heavier than you and shaped like a gingerbread man. Then you’re led to a recliner labeled “N3”, which will serve as the location of the final sullying of your soul. Now you are no longer you, but only “N3”. NOW your identity is gone and your humiliation complete and they give you twenty to thirty minutes comfortably ensconced underneath a mandatory warm blanket to contemplate that fact before asking you to pad down the hallway in your brightly colored anti-skid socks to the actual CT machine. You’ve finally made it.


The rest is easy, just lay down on the table and breath in an out as instructed. Oh, and try not to pee yourself when they inject the contrast. It’s going to feel like you’re peeing yourself, but you’re not. Don’t worry.

 Pff…

 So that’s a day in the life. Cancer is death by a thousand cuts, not a mercifully quick stabbing (and yet I still have a sweet scar that looks like I was in a sword fight). Hopefully the death leads to life, though, right?

Sunday, February 9, 2020

Hospital Stay 2.0

For our non-Facebook friends and those interested in more details: Levi unexpectedly spent the last two days in the hospital with adrenal fatigue.


After we got home from Houston, Levi went downhill daily with fatigue and nausea/vomiting until he had lost 10 lbs. in a week and couldn't hardly eat or get out of bed. By the time we realized this wasn't normal and made an appointment with his local doctor, he was so lightheaded he could hardly stand, and his blood pressure was extremely low. We made it to the doctor's office but were only there a short time before she sent us directly to the emergency room for fluids and steroids.


It turns out the adrenal tumor Levi had was secreting extra amounts of cortisol, making his "normal" level really high. So when the tumor was removed two weeks ago, he bottomed out on cortisol before his other adrenal gland had time to adjust. The solution is temporary steroids that will increase his cortisol for a couple weeks while his body adjusts to life with only one adrenal gland.

It didn't help things that Levi was also still taking blood pressure medicine that he was prescribed after cancer made his blood pressure high. When the tumor was removed, his blood pressure returned to normal, but since we hadn't been monitoring it at home we didn't realized he shouldn't be taking the medicine anymore.

All that to say, Levi is feeling much better and is back home doing normal life. In fact, he feels the best he has in a very long time! Fingers crossed he continues to feel well after he adds back the chemo pill in another week. We are so grateful for all your prayers and support during the ups and downs of this journey!

P.S. - Levi made it home for the daddy/daughter dance! They both had the best time.



Monday, January 27, 2020

Successful Surgery

We've had a busy few days since surgery, but I'm glad to report it went well! Levi is recovering as well as one might expect from major abdominal surgery, and we were able to leave the hospital today.


Glad Levi's parents and brother have been here with us

Surgery Results


I'll be the first to admit that my jokes about Levi having a c-section were woefully inadequate in describing his procedure. It turns out that surgery to remove a baby that is meant to come out is much easier than removing an organ intended to stay inside your body for life.

In addition to the tumor, the surgeon removed Levi's left adrenal gland, left kidney and some nearby lymph nodes in only three hours. While more was removed than we had hoped for, we were very pleased to hear that the doctor thinks he got all of the cancer in that area and there should be no major long-term effects.

The removed mass was sent off for testing, and the pathology report should return anywhere from 1-5 weeks from now. It will confirm whether or not all the cancer was removed, which will help doctors decided if additional treatment is required.

The incision turned out much larger than we expected

Clothed and walking laps just 2 days after surgery

What's Next


The surgical team opted not to remove the tumor on Levi's left lung due to the complicated nature of such a surgery, so the plan is to do radiation on it when we return to Houston for follow-up appointments six weeks from now. The doctor explained that the high doses of radiation given over the course of three days will be just as successful as surgical removal with only a 10% chance of recurrence. Plus, there are virtually no side effects! 

Levi will also resume his chemo pills in a few weeks after his body has time to heal from surgery. The doctor said they like to continue them for 1-2 years after surgery to make sure any remaining cancer cells are killed and to prevent recurrence. This news is pretty devastating, since the pills have made Levi feel like he has the flu all the time. We are hopeful that the side effects won't be as bad now that the tumor is gone, but only time will tell. 


OKC-turned-HOU friends Catherine & Ryan came to visit in the hospital

Continued Prayer Requests

  • A good pathology report that indicates all the cancer around the tumor was removed
  • Successful radiation of the lung tumor (to be scheduled first week of March)
  • Resolved inflammation of the lymph node near Levi's shoulder, indicating it is indeed benign, as doctors suspect
  • Better tolerance of the chemo pills
These sweet church friends came all the way from OK to be with us during and after surgery. So grateful for them!


Thursday, January 23, 2020

Surgery Details & A Tumor Shower

We are exhausted after 5 (FIVE!) pre-op appointments today that started at 6:15 a.m., so forgive this brief but practical update about Levi's surgery tomorrow.

His surgery will begin at 7:30 a.m., and it is expected to last 5 or more hours, depending on how invasive it becomes. The plan is to only take out his left adrenal gland along with the tumor, though his left kidney, pancreas, spleen and stomach are all fair game to be affected in some way. Pray with us that only the adrenal gland would have to be removed! The doctors seemed hopeful that this is possible, but they can't tell for sure until they're in there.

Levi will stay in the hospital for 3-4 days, and then we will be in Houston another 3-4 days before he can travel home. Pray with us for the shortest stay possible so he can make it to the daddy daughter dance on Feb. 1! Of course Levi's healing is #1 at the moment, but it would mean so much to both Nora and Levi to make that dance, if even for a short time.

That's all we know for now, so I'll leave you with pictures from the "tumor shower" our church small group threw for us before we left, complete with Target registry! We have the best friends.






Tuesday, January 21, 2020

Why I Drive

The truth is- and this is the thing that I’ve been afraid to admit even to myself until right now- that I’m afraid to die. It’s not the dying that scares me- no, I’ve made my peace with that- even the pain that it may involve. What scares me is what I’ll miss out on. Walking Nora down the aisle and and lying in a tent with the kids listening to the pitter-patter of the rain and stroking my wife’s hair. How much life will I not get to experience if cancer takes me too early?

And in this fear everything becomes so precious. Every time Nora giggles I just treasure it, because it may be the last time. Every basketball game or family dinner at home together or listening to Wyatt pray- it’s all so precious.

I could die on the operating table two days from now. Or complications a few days after that could take me. Or maybe I’ll beat it this time but it’ll come back with a vengeance years from now and I lose the battle that time. I just can’t escape the reality that this could be it. It was easier early on in my treatment, because there was still lots of time and options left to deal with this, but now all my eggs are pretty much in this basket. And it’s hard not to play out images in my head of things going wrong- my kids growing up with a different father and all kinds of things. If this doesn’t work then I’m going to have to start talking to doctors about how much time I have left.

And this is what keeps me up at night- why I am driving around at two in the morning on a bitter cold night listening to country music I don’t even like.



But it doesn’t always seem so bleak. Sometimes I’m able to believe that even if I do die, things will work out like they should. But that’s a pretty tiny percentage of the time. Increasingly often, I’ve been experiencing this thing called faith. I know, it’s a stupid word that’s been pirated by those who would use it as a a meaningless byword to describe something they don’t understand, and it irritates me even now. It’s such Christianese that I just want to puke when I hear it.

But Doug talked on Sunday about faith and Abraham and I began to actually understand what it means. More specifically, Doug talked about how Abraham had faith in things not yet seen, and it was credited to him as righteousness. So faith is believing something that you shouldn’t. And it occurred to me that there’s a whole long list of stories in the bible of people who have faith in a lot of stupid things. People who believed that God was on their side when they were going to war, even though, if you think about it, the people on the other side were probably saying exactly the same thing. People who believed that God wanted them to possess this certain piece of land even though there were already people on it who weren’t really any worse than the they were. People who believed God would give them babies when, biologically speaking, that really shouldn’t be happening. And on an on, story after story, God seems to be trying to tell us that He really values this faith thing, cheap as the word may have become these days.

And I think that maybe now, sitting up in the middle of the night because I can’t sleep for thinking about all the terrible things that might occur two days from now, God is asking me to believe in stupid things too. He’s asking me to believe that good still happens in a broken world and that, at the end of all of this, there’s more beauty to be found than we can even imagine. He’s asking me to believe that He is for me and that I am loved despite my deepest doubts and that He can see me through even this. He’s asking me to believe that He is so good that one day we’ll look back on this shit world and it won’t even matter that much in comparison to the glory that surrounds us. We’ll be drenched in light and coolness like a summer sunrise, early sunrise just a minute or two before the sun appears.

I think that’s what’s being asked of me, and I sort of believe it. God I hope I get to hear that pitter-patter on the tent one day.

Tuesday, January 14, 2020

Surgery Time

We have a date! Surgery has been scheduled to remove Levi's tumor on the 24th in Houston. We'll travel there on the 22nd, have several pre-op appointments on the 23rd and then stay in Houston for 1-2 weeks, depending on how Levi is recovering. I'll plan to list specific prayer requests after we meet with the surgeon next week.

In the meantime, I wanted to share an updated meal train signup. My mom will be taking care of the kids while we are gone, and I know it would be helpful for her to not have to plan meals. Thanks so much for blessing her with food while we are all out of our routine.