Wednesday, November 27, 2019

Story Time

“Hold fast. All storms pass.” 

Conrad Anker is known for this saying. He’s a climber who should know- he’s seen storms, and not just the kind that bring snow and wind. He watched his best friend Alex Lowe swept away in an avalanche on Shishapangma in the Himalaya that he survived. I guess when they heard the “crack” of the slab releasing, Alex ran one way and Conrad ran another and just like that, one was dead and the other wasn’t. Conrad married Alex’s widow and raised his boys. That’s a storm.

He suffered a heart attack on the side of Lunag Ri with David Lama. That’s a bad place to piss off your heart- it’s about as remote as you can get. I think he was even camped in a port-a-ledge (the tent thing that hangs on the side of a cliff) at the time, somewhere around 20,000’ of elevation. That storm passed, but then another one rolled in last year when that same David Lama was killed climbing in Canada.

He found the body of George Mallory on Everest, who may have been the first person to summit that mountain, 75 years after his disappearance and was witness to the suffering that happened there. That’s a storm.

And those are just a few tiny blurbs from a really long list of climbs, many of which involved actual storms- lying wrapped in down with nothing but flapping nylon between you and the wind and snow, all immersed in uncertainty, not knowing if you’ve finally pushed your luck too far and 75 years from now somebody will find you still lying there after the ravens have had their way with you. Like I said, Conrad Anker should know about storms.

I’ve really only ever been to that place once in all the mountains I’ve been on. It was on Rainier a few years ago. We were climbing the Kautz glacier route. It’s more technical than the standard Disappointment Cleaver route because it involves some rappels down rock faces and a few pitches of ice climbing. The first day we established a high camp at about 10,000’ on a ridgeline and bedded down after a beautiful sunset, feeling like kings looking down over our kingdom. Then the wind kicked up and blew so hard that we spent the night with our mouths filled with blown grit holding onto the upwind tent poles, hoping that we wouldn’t be literally blown off the mountain. Then the tent poles snapped, forming sharp ends that shredded the tent as it flapped like a flag in the gale and we just waited for the night to end. That storm passed.



Despite the sleepless night, the next morning we began our summit bid by traversing a few glaciers until we arrived at the Rock Step, a rock face probably 70’ tall that you rappel down onto the Kautz glacier proper. It’s an impressive place, what with the glacier spreading out below you and the Kautz ice headwall above. You hear rockfall as ice melts and the rocks it’s been holding in place cascade down the gullies around you, and then there are the occasional BOOMs as apartment-building sized chunks of ice calve off the headwall and tumble down the other side of the ridge from you, kicking off more rock and ice as they go.

Anyways, for various reasons (not the least of which was stage 4 cancer and a collapsed lung, although I didn’t know it at the time) I decided to stay at the Rock Step while the rest of the team headed to the summit. The plan was for me to wait there while they tackled the remaining ice pitches and then returned to me in a few hours. I’d already summited Rainier and didn’t want to slow down the team, so I watched as they rappelled and then began making their way out of sight up the ice, weaving their way through the penitentes. Then the storm arrived and I was trapped inside a ping pong ball, all alone.

I found a small cave and sheltered from the storm there for 9 or 10 hours and my team never returned. I didn’t know if they were alive or dead up there, but eventually I realized I had to move or die, as I had no gear for a night up there. The problem, though, was navigating the glaciers between me and high camp. Usually you rope up with your partners on glaciers so that, if one person punches through a snow bridge into a crevasse, the others can get them out. Since I was all alone, though, I wouldn’t have that luxury. Some of the glaciers on Rainier are almost 1,000 feet deep, so falling into one would most likely prove fatal. It was a slow trip back to high camp probing the snow out in front of me with my ice axe the whole way, trying to feel for weak layers in the snow.

I got lucky and that storm passed, but when I arrived at high camp I realized my epic wasn’t over yet. The heavy, wet snow had saturated my sleeping bag and then frozen into a block of ice. I pulled it apart like an accordion, put on every stitch of clothing I had (including my rain gear), and crawled in with the shredded rainfly of my tent wrapped around me like a burrito and tacked down with rocks. Then the waiting began, punctuated every so often by knocking the ice my breath formed off of the material resting on my face. Thank God the wind died down as the crystal clear milky way slid over me in the moonless sky. I've never felt so refreshingly alienated from the rest of humanity as I did that night. I couldn't have been more remote on the moon- not a soul in the world knew where I was and there was no way to change that. I don’t know how cold it got that night, but some nearby waterfalls froze into solid columns of ice. That night passed and the next day I descended another 4000’. Finally, the storm had passed.

And now I find myself in the middle of another storm. The uncertainty, the animal fear in the back of my mind, the exhaustion- it’s all so familiar. I’ve spent a lot of time in this place, and right now I’m tired of it, even though I'm pretty sure it'll ultimately be for my good. But thank God that all storms pass. And in the meantime, I hold fast, thankful this Thanksgiving for Conrad’s wise words.

Thursday, November 21, 2019

The Art and Science of the MegaNap

Remember how Forrest Gump said the best part of being shot in the butt-tocks was the ice cream? Well I gotta’ tell you, the best part of being on the Sauce is the sleep.

I. Can. Nap.


And I don’t just mean a little old close-my-eyelids and grab a quick, refreshing snooze kind of nap. No, I mean a show-stopping, day-altering, two-ton galactic explosion of a nap. The kind of nap that you wake up from not knowing what year it is. It’s like Morgan Freeman is in my head narrating a slideshow of images from the Hubble telescope of deep space. I’m talking about the kind of nap that starts with the sun up and ends with the sun down and the only thing left to do is eat dinner and, amazingly, go back to sleep.

And my naps aren’t limited to the afternoon, either. Oh no. I can wake up in the morning, take all my pills and down some cinnamon toast crunch, and head right back to bed for a nap that takes me right on into a late lunch like a runner rounding third heading for home. And for those of you considering cancer just for the naps, here’s a little pro tip: make use of the white noise app that your kids like. Crank up the “extreme rain pouring” and you’re off to an aquarian paradise for as long as you like, even when the buffalo herd returns home from school and stampedes around the house downstairs.

And I think these naps are truly the grace of God, because I’ve never wanted to escape consciousness more often than I do now. It’s not that I’m depressed or sad, although I’ve struggled more with those and anxiety than I expected with this. Honestly, it’s that a lot of times I just don’t want to be aware of my crappy day anymore. Let me be clear: I know that I’m a really lucky guy and I am not complaining. I have an amazing family and community and don’t have to worry about things that occupy a lot of people’s time in this world, like poverty or abusive family members or drugs or any number of things. But there are certain elements of my life at the moment that are, uh… less than desireable. Mostly it’s centered around my vanity and the fact that this present predicament, what with the double chin my low thyroid function is gifting me, the attractively smooth bald head, the ever-present dark bags under my eyes, and the potbelly caused by the sheer size of the tumor in my abdomen, makes me look like something you’d swerve around as it’s making a reckless slow-motion bid for the freedom offered by the other side of the road. That’s right, I’m becoming a turtle. An Early Thirties Mutant No-Longer-Even-Kind-Of-Athletic Turtle. So yeah, life is short and sweet and I know I should “carpe diem” and all, but sometimes a guy just needs a break.

And that, my friend, is why God gave us MegaNaps. Thanks be to God.

Tuesday, November 12, 2019

The Rain: A Letter to Self

Self,

You’ve been through a lot lately, and you know there’s a lot more to come.

All of the old symptoms refused go away this cycle, and new ones kept popping up all the time. It felt like you spent the entire day just trying to keep the train of little pills that rolls down your throat from coming off the rails. And then you went to the “Better Room” for more chemo infusions and you thought about how all the little chemo drops on all the IV poles in that place added up to a carefully measured and fastidiously administered poison rain. Or was it a life-giving rain?


Self, it’s very important that you think of that rain as life-giving and not poisonous. I wish I could tell you that all of this shittiness is happening for a reason, that it all serves some greater purpose, but I don’t honestly know yet if that’s true or not. You may never know the purpose behind it all. But whatever the case, it will be a lot better for you if you believe that the rain is life-giving.

Because here’s the thing: this is your one life, not a dress rehearsal for it. There is no practice for something else. Right now is all that you have. Yesterday and tomorrow are fictions that only distract you from reality, which is now. “But life and death is only a fiction, and not very deep. Why do you cry?” That you are here, right now, is the ultimate fact.

You must learn not only to embrace that fact, but you must follow where it leads and learn to live in that Now. This will be difficult at first, especially when Now isn’t a place you want to be. But when it is difficult or when you fail (both of which will happen often), you must not despair. You must be kind to yourself and live simply, with awareness. Always remember that your life, and especially your healing, are not a straight line, so you must not be surprised when you experience setbacks and bad days. And during those bad days when the whole world grows cold and hope flickers only dimly, you must tell yourself that this will not always be the case, nor has it always been so. Remind yourself that better times have always come, and try to believe that they will come again.

And there’s one last important thing: if you’re going to learn to live in the Now, to move into the New Country, you must not allow yourself to fear your pain. I don’t say that you should dwell on it or hold on to your pain just on principle, but you must be able to simply sit with it, to hold it up on your fingertips like a costly diamond and turn it, watching the light show off every radiant color in the palette in its facets. Because that’s what your pain is, a diamond of great price. If you let it, it will teach you lessons that can be learned no other way. So don’t fear it- just let your pain be there alongside you for as long as it needs. This is the road that leads to the New Country, and you will be better for having travelled it.

So, Self, good luck! Be on your way. Be of good heart and be brave, because this journey will require all the courage you knew you had and some you didn’t. And on your travels, I genuinely hope that “the Lord bless you and keep you; the Lord make his face shine upon you and be gracious to you; the Lord turn his face toward you and give you peace” because, like I said, this is your one life, and you should really make it count.

With great affection,
Self

Monday, November 11, 2019

Surprise! Chemo Round 3


I’ll spare you all the details, but wanted to share that Levi is going ahead with the 21-day chemo cycle, and he started round three today. The short version is that he realized the chemo pills are what have been making him feel so bad, so there’s no reason not to go ahead with the infusions. Fingers crossed that some new meds will keep the nausea and bone pain at bay, making this round smoother.

Tuesday, November 5, 2019

Just a little bit

We were hoping to share miraculous news today, but we are still glad to be sharing good news: Levi's tumor is shrinking! What was once 22x18x13 cm is now 22x16x12 cm. That's not a huge difference, but it is progress in the right direction, so we'll take it. 

The doctor explained that every little bit of shrinkage helps make a successful surgery more possible. If we tried to do surgery today, Levi would lose his left kidney, his spleen and likely part of his pancreas. The more we can get the tumor to shrink and develop a hard rind (another effect of chemo), the more we improve the surgery outcome. 

We also got some unexpected news today. There is a cancerous lymph node near Levi's left shoulder. Apparently it was caught on the last scan, but we have no memory of being told about it. It, too, has shrunk since last time, going from 2.8 cm to 1.3 cm. So while we're disappointed to learn about another cancer spot, we're grateful it seems to be responding so well to chemo!

We didn't get an update on the lung spot today, other than it is more clearly visible this time since the fluid on his lung was just drained last week. Hopefully they were able to get a more accurate measurement to keep an eye on it for next time.

While we were waiting for the doctor Levi said "man, I really feel bad." And then he put on this smile. He's a trooper!
The last round of chemo was especially tough on Levi, so we will be backing off to a 28-day chemo cycle instead of 21 days. The extra recovery time between cycles and additional medications to manage side effects will help him stay strong for surgery. And, bonus, he will feel better for the holidays!

We'll move ahead with two more rounds of chemo (the next of which will begin November 18th) followed by another check up in January. We're now praying that the tumor continues to shrink and the tingling in Levi's hands and ringing in his ears doesn't worsen. If the tingling and ringing worsen, we will stop chemo after round 4 even if the tumor continues to shrink. However, if it is shrinking and those side effects haven't worsened, we will continue with the full 6 rounds of chemo.

We're grateful for our comfortable hotel in Houston where Levi has been able to rest well between appointments. He's finally starting to feel slightly better as we're getting into week three of this round. We're looking forward to more good days ahead!

Saturday, November 2, 2019

What's Next

We're finishing up the second week of the second round of chemo, and it has been rough. Levi has felt really, really bad most days, but there were two days earlier this week where he felt good enough to run a single errand. And he managed to make the most of Halloween by dressing up as Mr. Clean!


We're hoping for a good week 3 like last round, but there are no guarantees. We'll be heading to Houston tomorrow (Sunday) for scans and blood work Monday, oncologist Tuesday, and endocrinologist Wednesday. They'll be looking for signs that the tumor is shrinking, which will determine whether or not Levi does another two rounds of chemo.

Unless Levi starts feeling better soon, it is going to be a difficult trip to Houston. Please join us in praying for:
  • Relief from bone pain
  • Quality sleep
  • No nausea
  • Comfort while away from home
  • A shrinking tumor