Monday, October 14, 2019

The Highlight Reel

I've been struggling to find a way to describe last week, and, despite any real sense of clarity,  I'm writing about it anyway.

We did some fun things recently, and it was tempting to post pictures on social media. It would have been easy to create a highlight reel of our experiences, but that would have been far from reality.

In actuality it was a difficult week. We were warned that week two of each chemo cycle would be the worst, and, without having experienced week three yet, I would say it was. Levi felt bad about 75% of the time, and the remaining 25% of the time he didn't have enough energy to do much more than walk across the house.

We tried to make the most of our time together, but note my captions that share the reality that pictures can't. This was the first week that it really hit us that our lives have changed for the foreseeable future.

We all made it to Touch-A-Truck! Levi mustered this happy face while feeling terrible, having a horrible headache, nausea & sky-high blood pressure. He spent most of the time sitting on a parking block and left early with his mom. Maybe going out after 4 days of chemo infusions, starting a daily chemo pill and getting a flu shot was a bad idea. 


We took our annual trip to Broken Bow over fall break with our friends. You'd never know it by these pictures, but Levi spent the night before we left on the trip in the ER with excruciating bone pain. It turns out the medicine he took to combat this side effect of another medicine wasn't enough. Thankfully we were able to get it under control and still go on our trip. Still, Levi was unable to leave the cabin while we were there. We're grateful for understanding friends and beautiful porch/hot tub weather. 
Today was Nora's school field trip to Orr Family Farm. Last year Levi and I were both able to go as chaperones. This year I left for the trip as Levi was taking a morning nap after a full night's sleep. 

Since Levi's diagnosis, our goal has been to have as much normalcy as possible. While none of this is normal, we're doing the best we can.

1 comment:

  1. You're doing an awesome job! Praying for strength and peace as your family walks through this.

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